Lucas F. DeFabio


Lucas F. DeFabio 11, passed away at his home on June 5, 2020 from complications due to his rare genetic disease Menkes Syndrome. He was born in Albany, NY on December 21, 2008 to Daniel and Tina DeFabio.

He attended the MOVE room at Gordon Creek Elementary and enjoyed his teachers, aides, classmates and bus drivers. His smile, laugh and sparkling eyes were contagious to all who met him. At age five he led the Ballston Spa Holiday Parade as its Grand Marshal.

He also enjoyed Bob Ross, fast rides in his wheelchair, Gilligan’s Island, and keeping his family and nurse Sandi gathered close around him. His struggle with his health is documented in the film Menkes Disease: Finding Help & Hope, which has been screened around the world.

Lucas is survived by his parents Daniel and Tina DeFabio, his brother Alex, and his grandparents Robert and Roseanne DeFabio and Fred and Betty Petersen.

A celebration of Lucas’s life will be held at a later date when social distancing allows.

Memorial contributions in memory of Lucas may be made to themenkesfoundation.org and rmhcofalbany.org.

Guest Book

Nazish Naseem

Daniel, Tina & Alex,

I am honored to know Lucas. My heart goes out to you guys. Lucas's memory will live on in hearts of many. For me, his bright eyes and smile was a great gift to me. Please accept my condolence in time of grief.

Diane Haley

I am so sorry to hear of Lucas’s passing. He was fortunate to have had such amazing parents. You did everything that you could possibly do to make his short life the best it could be. My heart goes out to all of you.
Love,
Diane

Patti Chandler

Roseanne and Bob, words can't express how I feel for you right now.
Just know I'm thinking about you.

Patty Groff

So sorry for your loss, he was a great child he loved to smile on the bus that is where I meet Mr Lucas always a big smile ;) prayers for you all

Colleen Leclair

Dear Tina, Daniel and Alex - I am so saddened to hear of the loss of your beloved, Lucas. I never had the pleasure to meet him, but, knowing Tina and Alex well, I can only imagine what a wonderful boy he was! Your love as a family is inspiring; take good care of each other during this trying time. God Bless you all...

With deepest sympathy,
Colleen Leclair

Daniel DeFabio

Many more stories of Lucas' life can be found collected here:
http://defabiodesign.com/lucas-blog

Liz Pinkston

Tina and family, I am so very sorry for your loss. The summers at Gordon Creek that I had the absolute privilege to work in the MOVE room made me such a better person. The happiness and joy Lucas always had on his face was contagious. Those eyes, his eyes talked for him and they sparkled brightly. It was nice to work at the high school during the regular school year and be able to check in with you and see how he was doing. My thoughts, prayers and hugs are with you. Rest In Peace Lucas ❤️

Marlene Beck

Tina, Dan and Alex

I'm so sorry about Lucas. I work in the Move Room and although I wasn't his aide, I had the absolute pleasure to assist with him in any way I could. He always brightened up my day. Every day he brought us joy and happiness. We were blessed to have him in our classroom and it won't be the same without him.

Wishing you strength for today and hope for tomorrow
Marlene Beck